MORE INFORMATION
PATIENT ORGANISATION
The Sarah Jennifer Knott Foundation is a patient organisation in Ireland and provides helpful information about CUP for patients, their families, friends, and carers.
HOW TO TELL FAMILY AND FRIENDS
It can be quite difficult to find the right words to explain what CUP is. Many people know about cancer, but they often do not understand that the primary tumour cannot be found.
It may be helpful to first explain the terms “primary tumour” and “secondary tumour” (metastases); then to explain that for CUP, only the secondary tumour can be found. Reasons why the primary cancer cannot be found are listed here.
ARE MY CHILDREN AT RISK OF CANCER?
CUP itself is not known to have a specific risk of being inherited. However, some people are more prone to develop cancer than others. DNA plays a central role in cancer evolution. Since a part of your DNA is passed on to your children, it could be possible that your children may be at risk of developing cancer. Please discuss your individual situation with your doctor. He will also tell you if a consultation with a human geneticist may be needed.
SUPPORTING DOCUMENT
This document is designed to support CUP patients in their cancer journey. It contains examples of topics patients may want to discuss with the doctor and some helpful ideas for the next visit to the doctor.
DOWNLOAD SUPPORTING MATERIAL
FURTHER WEBPAGES DEALING WITH “CANCER”
More detailed information on cancer may be provided by the following webpages (please note: the current webpage does not take responsibility for the content of external webpages):
American National Institute of Health
Deutsches Krebsforschungszentrum
DOWNLOAD SUPPORTING MATERIAL